• Rare Disease Day 2022

    Rare Disease Day 2022

    What is Rare Disease Day? Rare Disease Day is a patient-led globally coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. Rare Disease Day was established by EURORDIS and 65+ national alliance patient organization partners in 2008. Rare Disease

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  • Rare Diseases Day 2020: The Importance of Orphan Drugs in Combating Rare Diseases

    Rare Diseases Day 2020: The Importance of Orphan Drugs in Combating Rare Diseases

    An Overview of Rare Diseases: On February 29th, 2020 the world will observe Rare Diseases Day coordinated by the European Organisation for Rare Diseases (EURODIS). Now in its 13th year, this special day aims to spread awareness of rare diseases and the patients whose lives are impacted by them. But what exactly is a rare

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